What It Means When You Have Silent Celiac Disease

What Is Silent Celiac Disease?

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Updated on November 29, 2019

If you have celiac disease, you probably know it means your body reacts to the gluten protein found in the grains wheat, barley, and rye by attacking the lining of your small intestine.

In some people with the condition, this results in major gastrointestinal symptoms, including diarrhea, constipation, and abdominal pain. But other people with celiac disease don't notice major digestive symptoms. They may have other symptoms of celiac disease, including fatigue and neurological issues... or they may have no symptoms at all.

if you have celiac disease without noticeable symptoms, your condition is called "silent celiac disease" or "asymptomatic celiac disease."

While silent celiac disease may be entirely without symptoms, villous atrophy (the damage of the finger-like lining of the intestines) may still occur, foreshadowing the eventual development of overt and potentially severe intestinal injury.

How Silent Celiac Is Revealed

These days, with awareness of celiac disease growing, many more people are being diagnosed as celiac simply because they're identified through screening, not because they had symptoms. When someone in your family is diagnosed with celiac, medical recommendations call for screening all close relatives. This screening can pick up cases of asymptomatic celiac disease.

Other people are diagnosed with celiac disease because they have a related condition, such as thyroid disease or anemia, and their physicians refer them for celiac screening.

In many of these people, the diagnosis comes as a surprise (or even a shock); if you don't have digestive symptoms, you're probably pretty stunned to discover you actually have a serious condition involving your digestive tract.

Challenges of a Gluten-Free Diet

It can be tough to go and stay gluten-free if you don't notice symptoms from your condition. There's no doubt that eating gluten-free can be complicated and difficult, and cheating on the gluten-free diet is pretty tempting if you don't suffer from symptoms.

However, there are two reasons to stay gluten-free even if you don't notice major symptoms from gluten ingestion.

The first is to safeguard your long-term health. Cheating on the diet may contribute to some pretty significant health problems, including malnutrition, infertility, osteoporosis and potentially even certain cancers.

Even cheating on your diet once or twice a month can prevent your intestines from healing and may perpetuate the abnormal immune response that causes the disease, essentially wiping out the benefits of gluten-free eating.

In addition, many people with celiac disease, including silent or asymptomatic celiac disease, may develop other autoimmune diseases, such as rheumatoid arthritis and psoriasis, if they continue to consume gluten. While there's little research on this, some studies suggest that a gluten-free diet might prevent or help treat these conditions.

Benefits of a Gluten-Free Diet

The second reason to stay gluten-free, even if you don't notice major symptoms from gluten ingestion, is that you might actually feel better.

As a so-called "silent celiac," you shouldn't assume that you won't notice improved health once you adopt a strict gluten-free diet. In fact, recent research indicates the opposite: People with silent celiac disease who follow the gluten-free diet actually do report improved health.

Studies suggest that people with silent celiac disease tend to normalize low-grade symptoms and only recognize them once they are improved by a gluten-free diet.

In a study reported at the 2011 Digestive Diseases Week conference, a Finnish research team looked at 40 subjects who had no digestive symptoms but who tested positive for celiac disease on a very specific celiac disease blood test. All also had some intestinal damage.

The researchers split the group in two, assigning half of the patients to a gluten-free diet and the other half to a regular, gluten-containing diet. They then tracked them for a year through surveys designed to evaluate both gastrointestinal symptoms and health-related quality of life.

What the Study Found

The study found that survey scores—both in symptoms and quality of life—improved in the group following the gluten-free diet, while scores stayed the same in the group on the regular diet. In addition, levels of folic acid and vitamin B12 improved in the gluten-free group but stayed the same in the regular diet group.

Even though the group following the gluten-free diet hadn't noticed symptoms before, they reported seeing some minor symptoms—including reflux, bloating, abdominal distention, and flatulence—clear up when eating gluten-free. The researchers also performed repeat biopsies in both groups and noted improvements in intestinal damage in the group eating gluten-free.

After one year of the study, the researchers switched the gluten-eating group to the gluten-free diet. Once everyone in the study had eaten gluten-free for a full year, they polled the study subjects.

The results? A full 85 percent said they'd continue eating gluten-free, and 58% viewed their celiac screening and subsequent diagnosis as "positive" or even "very positive."

A Word From Verywell

Even if you're a true silent celiac and have no real symptoms, especially gastrointestinal symptoms, you may still notice health benefits, and maybe even see a few minor complaints clear up, after going gluten-free. In addition, you may possibly save yourself from additional health problems down the road by sticking to the gluten-free diet.