Coping With Pulmonary Embolism

If you have been diagnosed with a pulmonary embolism, you have already been through quite a lot. You have likely experienced some disturbing (possibly life-threatening) symptoms; you have probably been rushed through diagnostic testing; and, once the diagnosis was made, you were probably immediately placed on therapy.

The Road to Recovery

Recovering from pulmonary embolism will take some work, both on your healthcare provider’s part and on yours.

The First Few Days

Most people who experience pulmonary embolism are hospitalized for at least a few days, but experts now believe that some people, if their clinical condition is stable enough, can be treated at home.

People in the hospital with pulmonary embolism are almost always given anticoagulant medications (blood thinners) first to treat the condition. They may also require oxygen therapy, intravenous fluids, and pain medication for a day or two until the condition is stabilized.

As soon as you are able to get up and walk without excessive dyspnea (shortness of breath) or pain, it is important to do so. Moving around as early as possible after anticoagulant drugs have been started can help to prevent further blood clotting.

When your blood oxygen levels are adequate and your symptoms are under control, it will be time to go home.

After the Acute Illness

Once you are home, it is important for you to do what’s needed to continue your recovery. This means, in addition to taking care of yourself by eating regularly and getting plenty of sleep, you have to take your medications just as prescribed and walk as much as you can.

The primary things you need to focus on include:

• Sticking to your medication schedule. It is critical that you take your anticoagulation medication and other prescribed treatments as scheduled. If you think you may be having adverse effects from your drug, call your healthcare provider immediately. These medications are directly responsible for preventing another pulmonary embolism event. If you are experiencing concerning side effects, you should contact your healthcare provider right away. Do not stop taking the medication unless you are specifically instructed to do so.
• Staying active: Your healthcare provider should give you specific instructions about how often, and how much, you should move around during your first few days at home. And after the first few days, the more you can be up and around the better. This can help prevent additional clotting.

Your healthcare provider may add additional measures to help you recover or prevent further problems. These may include, for instance, home oxygen therapy or prescription compression stockings to help prevent deep vein thrombosis.

Preventing Future Problems

Most people who have pulmonary embolism feel like it struck them out of the blue—and that is true for many people. One minute you feel fine; the next you may be gasping for breath and having chest pain.

The healthcare provider is ordinarily less surprised upon making a diagnosis of pulmonary embolism. In most cases, people with pulmonary embolism have risk factors.

Some of these risk factors require lifestyle changes; others may require taking lifelong anticoagulant therapy. Your healthcare provider will probably have an excellent idea of which risk factors may have contributed to your pulmonary embolism and will be able to give you specific advice on preventing future events.

Other Support

While you may feel alone in your efforts to manage pulmonary embolism, there are actually many thousands of people each year who go through this experience. Your hospital may be able to refer you to local support groups of people who have had this problem. There are also useful online support groups for people coping with pulmonary embolism or deep vein thrombosis. Two of the better known are Clotcare and Stop the Clot.