Lung Cancer Support Groups and Support Communities

How to Find Lung Cancer Support Online and In-Person

cancer support group meeting
How can you find a lung cancer support group, community, or one-on-one support with someone who has been there?. Alina Solovyova-Vincent/Vetta/Getty Images

Cancer support groups and communities can provide tremendous support when you are living with lung cancer. You may have the most loving family and friends on the planet, but unless they have experienced cancer themselves, it is hard for them to really understand what you are going through. Cancer support groups offer an opportunity to share with others who have “been there” and experienced the array of emotions that come with a diagnosis of cancer.

Cancer support groups are also a place where you can learn from others. How did they feel during their treatment? How did they manage the financial strain? What worked to manage their symptoms? What questions should you be asking your doctor?

While any cancer support group may be helpful, many people living with lung cancer appreciate groups that are just for people with lung cancer. A 60-year-old man with stage 4 lung cancer told me that it was hard for him to connect with a 30-year-old woman with breast cancer in his support group. While he was concerned about leaving his family behind, her greatest concern seemed to be whether she would be able to get pregnant after treatment. That said, there is a common bond that people with any form of cancer experience, and spending time in person, on the telephone, or online with other cancer survivors can be very rewarding.

What Should I Look For in a Cancer Support Group?

Cancer support groups are not all the same, and it is important to find a group in which you feel comfortable. Look for a group that has “good listeners” -- people that don’t answer your sentences before you are finished speaking, and don’t jump to offering advice without hearing all you have to say. People that understand that sometimes you just need others to know what you are going through even though there isn't an answer. Try to find a group that has a positive emphasis as well. While sharing and supporting each other through the difficult times is crucial, having a group that becomes a “pity party” can leave you feeling drained and less than optimistic.

Local Groups

Local support groups offer the advantage of face-to-face contact with other group members, although they also require the energy of leaving your home to attend meetings. Options can include:

  • Your cancer care center, hospital, or oncology group: Ask your oncologist what options are available.
  • Community support groups: Many communities have cancer support groups. Ask your friends, call your local community office, or check your community newspaper to see what is available in your town. The Lung Cancer Alliance provides a list of different states that offer face-to-face support groups along with contact information.

Online Support Groups and Support Communities

Online support groups may lack the face-to-face interaction of local support groups, but they have the advantage of allowing you to make connections from home without traveling. Since the Internet is available 24/7, they also allow members to reach out for support any time of day or night. Some options include:

  • LUNGevity Support Community - LUNGevity offers the largest online network of people coping with lung cancer. 
  • Inspire - American Lung Association Lung Cancer Survivors Community - Inspire is a large community of lung cancer survivors who actively support each other day and night.
  • CancerCare - CancerCare is a national non-profit organization that offers online support groups, telephone support groups, and for those living in the New York Tri-State area, face to face support groups
  • The Cancer Survivors Network - The Cancer Survivors Network is part of the American Cancer Society and provides discussion groups and chat rooms for cancer survivors and their loved ones.
  • CancerCompass - Cancer Compass has many active message board discussions where cancer survivors can ask questions and interact online with others.

Telephone Cancer Support

For those who prefer the telephone over the Internet or desire one-on-one telephone counseling, services are available as well. Free services are offered by:

Matching Services for One-on-One Cancer Support

  • LUNGevity Lifeline - The lifeline is a service in which lung cancer survivors can be matched up one on one with another survivor facing a similar diagnosis. Caregivers of those coping with lung cancer may also find other caregivers through the lifeline who are facing the same challenges.
  • Phone Buddy Program - The Lung Cancer Alliance (LCA) offers this wonderful program. Staff at the LCA interview lung cancer survivors and their caregivers, and match them with other lung cancer survivors and/or caregivers that are facing similar situations.
  • Cancer Hope Network - Cancer Hope Network matches cancer patients with trained volunteers that have also gone through cancer treatment.

Keeping in Touch With Family and Friends

  • CaringBridge
    • CaringBridge provides a website for cancer survivors and their families, so they can keep in touch with other family members and friends. Those with cancer or a representative can post updates, and loved ones can sign in and send notes of support and encouragement.

Support for Children of Lung Cancer Survivors

Amidst the rigors of treatment, we can sometimes forget the needs of the children of those living with lung cancer. CancerCare for Kids offers online support groups for teens (13-19) that have a parent with cancer.

Safety with Social Media and Cancer

As a final note, cancer communities can be a wonderful way to get support and learn about your disease, but as with anything you do online, safety is important.  Check out tips for protecting your privacy as you share your cancer journey online.

Others With Lung Cancer - Lung Cancer Blogs

Perhaps you're not ready to join a lung cancer community, but you would really like to know what others living with lung cancer are feeling.  You can start by checking out some of these lung cancer social media blogs - contributed by some awesome people who are recording their journeys with lung cancer in order to help others feel less alone in facing the disease.

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