CFS & Fibromyalgia Fibromyalgia Fibromyalgia in Teens By Adrienne Dellwo Adrienne Dellwo LinkedIn Adrienne Dellwo is an experienced journalist who was diagnosed with fibromyalgia and has written extensively on the topic. Learn about our editorial process Updated on April 21, 2020 Medically reviewed by Lyndsey Garbi, MD Medically reviewed by Lyndsey Garbi, MD LinkedIn Lyndsey Garbi, MD, is a pediatrician who is double board-certified in pediatrics and neonatology. Learn about our Medical Expert Board Print Table of Contents View All Table of Contents Overview Symptoms Causes and Risk Factors Diagnosis Major Criteria Minor Criteria Treatment Prognosis Challenges Juvenile vs. Adult Overview Fibromyalgia (FMS) is a chronic pain condition that's most often diagnosed in women of child-bearing age or older. However, anyone can get it — and that includes kids and teenagers. In kids, this illness is called juvenile fibromyalgia syndrome (JFMS). You might also come across juvenile primary fibromyalgia syndrome. "Primary," in that context, means that it doesn't accompany another rheumatologic illness such as arthritis or lupus. If it does accompany another such illness, the fibromyalgia is called "secondary." We don't know a lot about JFMS, and many healthcare providers aren't aware that young people can have this condition. However, we're learning more all the time and awareness and acceptance in the medical community is on the rise. It's scary to suspect your child has JFMS or to have them diagnosed with it. Try to keep a few important points in mind: JFMS is NOT a terminal illnessMultiple treatment options are availableWith proper treatment and management, your child can live a full life Before looking at the information specifically for JFMS, it's important to get a basic understanding of FMS. In FMS, the nervous system misfires when it comes to pain. It amplifies pain signals and turns signals that should just be unpleasant into pain. Because pain is not coming from a specific joint or muscle, it can turn up anywhere in the body at any time. Pain may move from one area to the other, be constant in specific areas, or both. The severity can fluctuate wildly as well. All forms of FMS can involve dozens of symptoms which also have widely varying severity. In some people, symptoms may be fairly consistent, but in others, they may come and go. It's common to see a pattern of flares (periods of severe symptoms) and remissions (times when symptoms are reduced or absent.) While FMS has traditionally been treated by rheumatologists, as researchers have found more and more neurological features, it's begun to be treated by neurologists as well. FMS also impacts the immune system and hormones. This causes a host of symptoms that may appear to have nothing to do with each other and can make the illness seem bizarre. Tetra Images / Getty Images Symptoms The primary symptoms of JFMS include: Widespread pain and tendernessFatigueUnrefreshing sleepMorning stiffnessHeadachesAnxietyTight muscles Less common symptoms can include: Cognitive problems, including difficulty concentrating (called "fibro fog")Dizziness/light-headedness Many cases of JFMS include overlapping conditions. They're sometimes confused for symptoms of JFMS but may need to be diagnosed and treated separately. Common overlapping conditions include: DepressionIrritable bowel syndrome (IBS)Sleep disorders (other than unrefreshing sleep), especially sleep apnea, restless legs syndrome, and periodic leg movement disorder Causes and Risk Factors JFMS isn't very common. Researchers estimate that between one and two percent of school-aged children may have it. We do know is that JFMS is most commonly diagnosed in the teenage years, and girls are more likely than boys to be diagnosed with it. A lot of kids with this condition have a close family member with adult FMS, often their mother. Because of this, experts suspect there's a genetic link but have yet to pin it down. Some cases of JFMS appear to be triggered by infections, serious physical injury, or emotional trauma. Others (secondary cases) may be caused in part by other conditions that cause chronic pain. This is believed to be due to changes in the brain that can re-structure the areas that deal with pain processing. Diagnosis There's no blood test or scan that can diagnose JFMS, but your healthcare provider will need to do several tests to rule out other potential causes of your child's symptoms. A diagnosis of JFMS is generally based on a physical exam, medical history, and diagnostic criteria. Your child must have all of the major criteria and at least three of the minor criteria below. Major Criteria Widespread pain in three or more places for at least three monthsAbsence of another cause for symptomsNormal test results for similar conditionsPain in five of the 18 FMS tender points Minor Criteria Chronic anxiety or tensionFatiguePoor sleepChronic headachesIBSSubjective soft-tissue swellingPain that's worsened by physical activityPain that's worsened by changes in weatherPain that's worsened by anxiety and stress Some healthcare providers may use the adult FMS diagnostic criteria, which have been found to be nearly as accurate in kids as the JFMS criteria. If your healthcare provider isn't familiar with JFMS and how it's diagnosed, you may want to see a specialist. Pediatric rheumatologists have more training in recognizing and diagnosing this condition. Treatment The recommended treatment approach for JFMS is a combination of several treatments, and it usually involves several medical professionals. There is no cure for JFMS, so treatments are aimed at reducing symptoms and improving functionality. Some treatments have been studied specifically for JFMS, but healthcare providers also use treatments that have been studied only in adult FMS. Because of the specific symptoms and their severity can vary widely, treatment should be tailored to the individual. Treatment options include: MedicationsNutritional supplementsphysical therapyA specially structured exercise programCognitive-behavioral therapySupport groups Medications often include non-addictive painkillers, SSRI/SNRI antidepressants, low-dose tricyclic antidepressants, muscle relaxants, anti-inflammatories, and sleep aids. Some popular supplements for FMS include: SAM-e5-HTPVitamin DVitamin B12Magnesium malate Many other supplements are used for this condition as well, and some are used based on symptoms. Physical therapy can help stretch and strengthen muscles and improve muscle tone, all of which can help reduce pain. It's important that you choose a physical therapist who understands FMS. Exercise is considered key to treating all forms of FMS. However, it must be tailored to the fitness and exercise tolerance level of the child. The length and intensity of workouts should be increased very slowly to avoid triggering a symptom flare. Cognitive-behavioral therapy (CBT) is the JFMS treatment that's gotten the most attention from researchers. It involves educating the child about emotional coping strategies as well as ways to manage the condition, such as pacing, good sleep habits, and following treatment regimens. Not all research agrees, but the preponderance of studies point to CBT as an effective treatment for JFMS. Some research suggests that an exercise program combined with CBT may be especially beneficial. Support groups, especially those aimed at the appropriate age group, can help prevent feelings of isolation and being "different." If you don't have access to support groups, you may be able to find one online that's a good fit for your child. Finding the best set of treatments for a child with JFMS takes time and experimentation. It's important for both parents and children to understand that not all treatments will work and there are likely to be setbacks along the way. Prognosis The prognosis for children with JFMS is actually better than for adults with FMS. Some kids recover well and have significantly milder symptoms as adults. Those who find and stick to effective treatment/management strategies may not even meet diagnostic criteria after a few years. Some, however, may continue to have symptoms into adulthood. It's also possible for symptoms to largely go away, only to come back later in life. Regardless of what happens, it's important to remember than many people with FMS lead full, productive, happy lives. Challenges Kids with JFMS can face a lot of problems because of their illness. They may feel "freakish" because they're not like their friends and classmates. They may feel isolated because they have to withdraw from a lot of activities. Studies show that they miss a lot of schooling which can lead to academic problems and stress. Additionally, they may have adults in their life who question whether they're actually sick. People may view them as lazy and trying to get out of work. The emotional impact of these attitudes can be significant and can impair the child's ability to cope with the condition, physically and emotionally. If your child misses a lot of schooling you may want to explore options such as tutoring, online school, or homeschooling. When a child is sick, it impacts the entire family. Complicating the matter, because FMS tends to run in families, a lot of kids with JFMS have a parent with FMS. It may be beneficial for the entire family to have counseling in order to deal with the problems and hardships involved. Juvenile FMS vs. Adult FMS Because we don't have a lot of information specifically about JFMS, you and your healthcare provider will likely need to rely on the information on the adult form of the illness. They're generally quite similar, with a few key differences. In JFMS: Fewer tender points are required for a diagnosisSleep disturbance tends to be greaterPain tends to be lesserThe prognosis is better Inflammation may be higherSome medications are inappropriate for children, or lower dosages may be neededSpecial attention needs to be paid to relationships with peers and family members Research suggests that kids with JFMS who also experience anxiety or depression have the hardest time functioning. As a parent, it's important for you to learn how to take care of your child with JFMS and also to advocate for them with extended family, school personnel, and other people they're around. Your knowledge, support, and love can go a long way when it comes to helping your child live with this illness. Sources Verywell Health uses only high-quality sources, including peer-reviewed studies, to support the facts within our articles. Read our editorial process to learn more about how we fact-check and keep our content accurate, reliable, and trustworthy. Goulart R, et al. Revista brasileira de reumatologia. 2016 Jan-Feb;56(1):69-74. Psychological aspects of juvenile fibromyalgia syndrome: a literature review. Kashikar-Zuck S, et al. Clinical journal of pain. 2016 Jan;32(1):70-81. A qualitative examination of a new combined cognitive-behavioral and neuromuscular training intervention for juvenile fibromyalgia. Tesher MS. Pediatric annals. 2015 Jun;44(6):e136-41. Juvenile fibromyalgia: a multidisciplinary approach to treatment. Ting TV, et al. Journal of pediatrics. 2016 Feb;169:181-7.e1. 2010 American College of Rheumatology adult fibromyalgia criteria for us in an adolescent female population with juvenile fibromyalgia. Tran ST, et al. Arthritis care & research. 2016 Jun 22. [Epub ahead of print] Preliminary outcomes of a cross-site cognitive-behavioral and neuromuscular integrative training intervention for juvenile fibromyalgia. By Adrienne Dellwo Adrienne Dellwo is an experienced journalist who was diagnosed with fibromyalgia and has written extensively on the topic. See Our Editorial Process Meet Our Medical Expert Board Share Feedback Was this page helpful? Thanks for your feedback! What is your feedback? Other Helpful Report an Error Submit